Bogdan i Pavle Marjanović
Bogdan i Pavle Marjanović

For Bogdan and Pavle!

Description

Humanitarian Foundation BUDI HUMAN - Aleksandar Šapić

raises funds for Bogdan (2007) and  Pavle (2015) Marjanović.

Bogdan and Pavle suffer from a rare and severe hereditary disease - Lesch Nyhan syndrome.

Children are mentally preserved, happy and sociable boys  but they are 100% disabled. The initial diagnosis for Bogdana was cerebral palsy, and only 6 years after the five-day blood-urinating and very poor kidney function, he  was diagnosed with Lesch Nyhan syndrome.

Since then, he regularly takes a  therapy for kidneys and for lowering the uric acid. Now he has a chronic kidney disease while kidneys function is also reduced .

Lesch-Nyhan syndrome is a severe, rare (1: 380000) hereditary disease, caused by the mutation of the HPRT gene. It is characterized by an extremely large auto-aggression, people with this syndrome often bite nails, and even the fingertips or the lower lip (sometimes they even ask to be tied to feel safer). They have no control over the muscles,  a lot of unwilling movements, they  cannot hold their bodies, very often they have stones in the kidneys.

The youngest brother Pavle has the same diagnosis as Bogdan. From his fourth month, he receives the same treatment as his brother, but the examination found that his kidneys were deteriorating too...

Brave boys need to go to hippotherapy, other therapies, defectologists, and speech therapists. It is also necessary to purchase the medicines ...

Help Bogdan and Pavle! 

For Bogdan and Pavle's better childhood! Let's be humane!

Latest payments

SMS MTS 10/2024
19.12.2024
For Beneficiary373
400,00 RSD
ANON.
03.12.2024
PayPal payment
For Beneficiary373
1.034,00 RSD
MARINA MILEKIĆ
29.11.2024
For Beneficiary373
10,00 RSD
MARINA MILEKIĆ
29.11.2024
For Beneficiary373
10,00 RSD
SMS YETTEL 10/2024
27.11.2024
For Beneficiary373
200,00 RSD
VLADAN DIMITRIJEVIC
26.11.2024
For Beneficiary373
2.000,00 RSD
SMS MTS 09/2024
26.11.2024
For Beneficiary373
400,00 RSD
SMS A1 10/2024
18.11.2024
For Beneficiary373
800,00 RSD
SMS MTS 08/2024
17.10.2024
For Beneficiary373
400,00 RSD
SMS MTS 07/2024
08.10.2024
For Beneficiary373
800,00 RSD

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