Humanitarian Foundation BUDI HUMAN - Aleksandar Šapić

 

raises funds for Mihajlo (2011) and Dimitrije (2015) Kragovića.

 

Mihajlo was born on 3rd  August 2011, ten days after the due date. He was graded with grade eight but he had an umbilical cord wrapped around his neck three times. His health and motor skills were monitored, and problems with  motor skills started in the seventh month. Examinations by a pediatrician and physiatrist show general hypotonia. They go to Institut for Mother and Child’s Care (IMCC)  where all the analyzes were done. For four and a half years, it had not been possible to find out the cause of hypotonia. Mihajlo was enrolled in a kindergarten in the development group and daily work with experts brought him to a pretty good condition. He was able to sit and push himself around the room, play with the car, understand everything and even to say a few words. He went on excursions, this wonderful warm boy, smiling and full of life.

 

On 19 December 2015 he had the first seizure. He was taken to the pediatrics of the Clinical Center in Kragujevac. He remained in intensive care. One side of his body trembled non-stop, the seizures failed to stop. Parents find out that he has the Encephalitis-Herpes virus on his brain and cerebral cortex. Months were passing by and his condition was  getting worse and worse. All possible medications did not help him. The lungs were getting worse. The secretion covered most of the lungs,  high temperature, nutrition through a tube, bacteria ... With the urgent intervention of bronchoscopy at IMCC, they managed to save his life. Mihajlo was at the institute for forty-three days. Doctors did everything possible to save him, and they stopped the seizures. He had been receiving neurological therapy for a long time. As his condition was under control, the doctor was satisfied. At the age of four and a half, he weighed only ten kilograms. They fed him on a probe for eight months, and later PEG was installed. He progressed in weight. But unfortunately, everything that Mihajlo was, knew and was able to, disappeared. Now he does not sit or follow the gaze, his spine,legs, hipis are very deformed. But the parents are happy with his smile, a look that is clear, happy, full of love and warmth. By not feeding on the mouth, the jaw is significantly deformed too. He is occasionally taken to the school where he is enrolled, because the first contact with his teacher was emotional.

 

Dimitrije was born on 6 November 2015, with a grade of nine and stem cells were taken from the umbilical cord. Everyone was happy that Dimitrije would support his brother. They followed him for months and everything was fine, when it was noticed that Dimitrije could not push with his feet. A genetic test was done and samples were sent to Barcelona. The result arrived on 12 May  2017, when he was diagnosed with - Leber's hereditary optic neuropathy. Both the boy and the mother have a mutation in the C.171> A gene in the NDZ gene. In the eighteenth month, Dimitrije got meningitis and went through absolutely the same problems, just like Mihajlo. He was much worse mentally and physically than his brother. He also had a PEG implanted two years ago. He doesn't walk or  follow with his eyes, he is being fed on PEG, his motor skills are very bad. This diagnosis is difficult and progressive, the muscles are weak, atrophied, and both boys use metabolic therapy.

 

Mihajlo and Dimitrije need funds for stem cell transplantations, rehabilitation, physical therapy, spa treatment, medications, supplements and medical supplies, heel surgery, orthopedic aids and they both need funds to cover travelling and accommodation costs.

 

For Mihajlo and Dimitrije! Let's be humane!

 

Let's help Mihajlo and Dimitrije!